In December of 2013 we were just finishing up Dad's intense round of chemotherapy and radiation. And we were still trying to figure out this whole "brain cancer" thing. We still didn't understand the insurance world (although, I'm not sure we do even now!), or how radiation treatment would impact Dad long term- and we still didn't really, truly understand this journey. I know I was still very upset with God- my faith was being tested in so many ways, with my heart wanting to find hope in it all, and my head being filled with anger, resentment, and sadness.
I remember thinking that this could be our last Christmas with Dad.
While, that wasn't the last, in fact this is Dad's 5th Christmas post-diagnosis- there is something I've learned as we've reached various milestones in Dad's journey.
Sure- holidays are important, it's a time where family and friends get together- but I'm reminded that it's really not the holidays that mean that much.
In fact, I still find myself getting annoyed with Dad at the same things he did pre-diagnosis- whether it's when he snores while he's napping, or when he goes to wash his hands and NEVER looks for a towel first, only to have wet hands and look to me in the kitchen to get him a towel- and it's in those moments I remind myself how lucky I am to still get annoyed with my Dad on a day to day basis. These moments remind me that he is still here with us- that Dad has beat every odd placed against him.
And these little moments continuously remind me that Dad is truly a walking MIRACLE.
So on this Christmas, and really every day of the year, I'm going to take the moments where Dad's habits annoy me, or where his humor shines through, and thank God that he gave us this miracle. This miracle that reminds us again what a truly amazing God we serve- one that has the power to do things the human mind thinks is impossible- things that give us such great joy, and one that has the ability to comfort us and give us hope in some of our darkest moments.
I am so very thankful for my faith these last four years- for without it, y'all I would have crumbled and been so broken throughout it all. And as I think about how strong my faith has become over the last four years, I also look at the strength of our family- I look at how God took something so horrible and difficult, and gave it to us to make us stronger. If that doesn't make you look at God's work in awe, I'm not sure what will.
This weekend I'm also reminded of a friend's cancer journey that is just beginning, and to say I haven't shed some tears since her diagnosis would be such a complete lie- as my heart broke when I heard the news. And this weekend I will attend her "head shaving" party- if you know this girl, having a party for her head shaving is just perfect- as she is always the life of the party, everyone's big sister, and an incredible friend to even a stranger.
And as my mind started to go back to our initial diagnosis and the months after, the tears flowed even more, as I started to think about the difficulties they will face- some days just filled with nothing but one bad thing after the other- but that's something they know, they know cancer is hard. So instead, I wanted to share with her the positive of it all- that even if they think it's not possible, cancer will find a way to make your family more appreciative, closer and gain an understanding that many don't fully have- that life can change at any moment, and to really appreciate the little things.
So this Christmas season we will continue to be so thankful and so blessed for our Christmas miracle, Dad, and we will continue to support and pray for those fighting through the battle of cancer- and for those who are fighting through the holiday season after losing a loved one to this horrible disease.
Many of you may have seen the interview with Meghan McCain and Joe Biden, and regardless of your political views I hope you saw the true purpose of that interaction- it was one family providing hope to another. A family, that although lost their son to this terrible disease, wanted his legacy to continue in showing others that through some of your darkest of times, there is always hope. I continue to pray that Dad's story is that for others- Hope.
Wishing you and your family a wonderful holiday season- may it be filled with love, laughter and joy.
Thursday, December 14, 2017
Tuesday, November 28, 2017
MRI Updated. 11/28/2017
Dad's MRI is stable! All is good, with another MRI in about 4 months.
We are so incredibly blessed and have so much to be thankful for.
Thank you all for being on this journey with us, and thank you for helping us BTHO Brain Cancer!
We are so incredibly blessed and have so much to be thankful for.
Thank you all for being on this journey with us, and thank you for helping us BTHO Brain Cancer!
Monday, November 20, 2017
Thanksgiving Update. 11/20/2017
I looked back and realized it has almost been one month since I last updated everyone- but as I've said before, no news is typically good news!
October FLEW by and here we are getting ready for Thanksgiving...and another upcoming MRI.
Thanksgiving is one of my favorite holidays- from food, family, and, of course, a break from work!- how could you not love this time of year?
Dad has been feeling well, and doing well! Y'all, the blessings have been shown to us in so many ways. I can't believe it's been over 4 years since we found out about Dad's diagnosis.
But as thankful as we are, and as much as we look forward to another Thanksgiving with Dad, the upcoming MRI still lingers in my mind.
For those of you that have experienced upcoming scans- you know the feeling I'm talking about. The gut-wrenching concern, anxiety and overall fear. And as I was looking at my calendar, I couldn't help but see the dreaded "MRI" drawn on a date.
My heart sank.
But I'm reminded once again about not fearing bad news. I'm reminded once again to live in the moment.
"Trust Me, beloved. Every time you have an anxious, fearful thought, you need to take multiple looks at Me. Speak My Name to remind yourself I am near, ready to help you."
First, let me say that was NOT the devotional I read this morning or the one I planned to reference in this post, but I turned to that page on accident and starting typing those words- then realizing that's not the verse I wanted! Clearly, there is no accident in that at all! Those are words I SO badly needed to hear this morning, and in this VERY moment. Trust Me.
But here is the devotional that really spoke to me this morning:
"Let me teach you how to spend more of your time in the present. The future, as most people conceptualize it, does not really exist. When you gaze into your tomorrows, making predictions, you are simply exercising your imagination. I alone have access to what is "not yet" because I am not limited by time."
This whole anxiety and fear, and trusting, has been such a HUGE struggle for me these last 4 years. And it goes into so many aspects of your life, from planning trips (what if Dad isn't doing well?), to making sure you have cell phone service at all time (you know, just in case Dad has another seizure)...as if I didn't have anxiety to begin with, throw in cancer- and man, it's been a constant struggle.
But my prayer, and my focus, this Thanksgiving is to really focus on the present. To focus on friends & family, to focus on the time we have with one another, and to focus on how blessed we really are- regardless of the upcoming MRI.
We wish you all a wonderful Thanksgiving- and we ask for continued prayers at our upcoming MRI.
Thank you all, and thanks for helping us BTHO Brain Cancer!
October FLEW by and here we are getting ready for Thanksgiving...and another upcoming MRI.
Thanksgiving is one of my favorite holidays- from food, family, and, of course, a break from work!- how could you not love this time of year?
Dad has been feeling well, and doing well! Y'all, the blessings have been shown to us in so many ways. I can't believe it's been over 4 years since we found out about Dad's diagnosis.
But as thankful as we are, and as much as we look forward to another Thanksgiving with Dad, the upcoming MRI still lingers in my mind.
For those of you that have experienced upcoming scans- you know the feeling I'm talking about. The gut-wrenching concern, anxiety and overall fear. And as I was looking at my calendar, I couldn't help but see the dreaded "MRI" drawn on a date.
My heart sank.
But I'm reminded once again about not fearing bad news. I'm reminded once again to live in the moment.
"Trust Me, beloved. Every time you have an anxious, fearful thought, you need to take multiple looks at Me. Speak My Name to remind yourself I am near, ready to help you."
First, let me say that was NOT the devotional I read this morning or the one I planned to reference in this post, but I turned to that page on accident and starting typing those words- then realizing that's not the verse I wanted! Clearly, there is no accident in that at all! Those are words I SO badly needed to hear this morning, and in this VERY moment. Trust Me.
But here is the devotional that really spoke to me this morning:
"Let me teach you how to spend more of your time in the present. The future, as most people conceptualize it, does not really exist. When you gaze into your tomorrows, making predictions, you are simply exercising your imagination. I alone have access to what is "not yet" because I am not limited by time."
This whole anxiety and fear, and trusting, has been such a HUGE struggle for me these last 4 years. And it goes into so many aspects of your life, from planning trips (what if Dad isn't doing well?), to making sure you have cell phone service at all time (you know, just in case Dad has another seizure)...as if I didn't have anxiety to begin with, throw in cancer- and man, it's been a constant struggle.
But my prayer, and my focus, this Thanksgiving is to really focus on the present. To focus on friends & family, to focus on the time we have with one another, and to focus on how blessed we really are- regardless of the upcoming MRI.
We wish you all a wonderful Thanksgiving- and we ask for continued prayers at our upcoming MRI.
Thank you all, and thanks for helping us BTHO Brain Cancer!
Monday, October 23, 2017
Happy Birthday Mutz! 10/23/2017
Today we get to celebrate someone's birthday that has managed to hold this family together throughout the years- especially these last 4 years- and someone who has become everyone's favorite Mutz.
Happy Birthday Mom!
I could go on and on about Mom- her dedication, her faith, her determination- but then my post would be pages and pages long, and Mom would call me to tell me how I give her too much credit. (Y'all, I NEVER give her too much credit- if anything she doesn't get enough credit)
She's selfless, she's hard headed (usually in a good way!), she's faithful, she's kind, and she's reliable. She goes out of her way to take care of her three girls, and now three grand babies. She does all the things for her grand babies that she would never allow us girls to do growing up- like eating m&ms before dinner, or staying up late to watch tv- or getting EVERY toy out to play with and making the house look like a tornado came through- and maybe my favorite, going overboard at Christmas to make sure the little ones LOVE that time of year.
Yes, Mutz does it all.
She's had to learn how to do a lot of things since Dad's diagnosis- as I remember so very clearly sitting in the hospital room on this day four years ago as we waited to get discharged with Dad. Sitting there trying to figure out exactly HOW we were going to do it all. Sitting there trying to figure out exactly HOW we would ever survive it all. Sitting there and looking at one another with a common understanding that we would have to rely on one another and lean on one another for the daily strength to just get through it all.
And she will deny it all- but she's the reason why we got through it all, and she's the reason why we survived it all with smiles on our faces and hope in our hearts.
While we have no idea what the next days, months, and years will hold- the one thing we do know is that we can all handle anything together. That we can walk through some of the darkest of moments because Mom has been there to show us that through it all, through the moments of your deepest despair, there can be hope, and there can be light.
Today we wish Mutz the happiest of birthdays, as we celebrate tonight with family, food, and lots of wine. Here's to many more birthdays Mutz!
Thursday, October 5, 2017
Our 4 YEAR Cancer-versary! 10/5/2017
Today marks Dad's 4 YEAR Cancerversary. Y'all FOUR YEARS!
Statistically, only 7% of Glioblastoma patients live to four years. We are so incredibly lucky. And we are so incredibly blessed.
And as this day comes, it's hard to not take some time to think back on these last four years- four years that have been an absolute roller coaster, with lots of lows- but also some incredible highs.
The day of Dad's seizure, the day of his first MRI result, the day of his surgery, those moments feel like they happened just yesterday- and then I think back to the blur that was the months that followed. The daily chemotherapy & radiation treatments, the alarms set all through the night for Dad to wake up to take his steroid medication, the countless nights where I slept on the couch "just in case" something happened, and the endless talks I had with the man upstairs- I sometimes wonder how we survived it all.
And as much as that feels like just yesterday, it's hard to imagine it was in fact FOUR years ago. It's pretty incredible the amount of quality time we've been given, time that was not expected when we heard the word "cancer", time that we've learned to appreciate more than anyone could ever imagine, time that I'm so incredibly thankful we've been given.
When I think back to our devastation after Dad's diagnosis- our hearts filled with "what if" and "why us"- it's amazing to see how God has turned something so devastating, into something so inspirational. It's amazing how something like cancer could easily make you turn your back on Him, but instead gives you the opportunity to see Him work in the darkest of moments. It gives you the opportunity to witness miracles right before your eyes. It gives you the opportunity to grow in a way you never really imagined.
My devotional today was absolutely perfect for this day:
"When things around you or in the world seem to be spinning out of control, come to Me and pour out your heart. Instead of fretting and fuming, put your energy into praying...Don't dread bad news or let it spook you. Instead, keep your heart steadfast and calm through confident trust in Me."
We've continued to put our trust in Him, to guide us through this journey where we have no clue where it may take us, but knowing that throughout this journey we can be confident that He is with us always.
And as we've grown spiritually, we've also grown as a family. A cancer diagnosis where we were just a family of seven, and now, a family of 10! Dad has witness three grand babies come into our family- each with their own little personality, each that leave us wondering how we ever enjoyed life as much without them.
We take each day ahead as just that, ONE day at a time. Enjoying the little moments, celebrating the big moments, and learning that throughout it all one thing remains the most important- family.
Thank you all for being on this journey with us throughout Dad's brain cancer fight. We have been blessed with countless prayers and an amazing support system of friends & family- we could not have survived these last four years without you all.
Dad's next MRI isn't until after Thanksgiving, so until then we will continue on living and loving each day with Dad. Dad's last MRI showed no signs of tumor (REMISSION!) and he is still off of all his treatments- no chemotherapy or Avastin. Thank you all again, and thanks for helping us BTHO Brain Cancer!
Statistically, only 7% of Glioblastoma patients live to four years. We are so incredibly lucky. And we are so incredibly blessed.
And as this day comes, it's hard to not take some time to think back on these last four years- four years that have been an absolute roller coaster, with lots of lows- but also some incredible highs.
The day of Dad's seizure, the day of his first MRI result, the day of his surgery, those moments feel like they happened just yesterday- and then I think back to the blur that was the months that followed. The daily chemotherapy & radiation treatments, the alarms set all through the night for Dad to wake up to take his steroid medication, the countless nights where I slept on the couch "just in case" something happened, and the endless talks I had with the man upstairs- I sometimes wonder how we survived it all.
And as much as that feels like just yesterday, it's hard to imagine it was in fact FOUR years ago. It's pretty incredible the amount of quality time we've been given, time that was not expected when we heard the word "cancer", time that we've learned to appreciate more than anyone could ever imagine, time that I'm so incredibly thankful we've been given.
When I think back to our devastation after Dad's diagnosis- our hearts filled with "what if" and "why us"- it's amazing to see how God has turned something so devastating, into something so inspirational. It's amazing how something like cancer could easily make you turn your back on Him, but instead gives you the opportunity to see Him work in the darkest of moments. It gives you the opportunity to witness miracles right before your eyes. It gives you the opportunity to grow in a way you never really imagined.
My devotional today was absolutely perfect for this day:
"When things around you or in the world seem to be spinning out of control, come to Me and pour out your heart. Instead of fretting and fuming, put your energy into praying...Don't dread bad news or let it spook you. Instead, keep your heart steadfast and calm through confident trust in Me."
We've continued to put our trust in Him, to guide us through this journey where we have no clue where it may take us, but knowing that throughout this journey we can be confident that He is with us always.
And as we've grown spiritually, we've also grown as a family. A cancer diagnosis where we were just a family of seven, and now, a family of 10! Dad has witness three grand babies come into our family- each with their own little personality, each that leave us wondering how we ever enjoyed life as much without them.
We take each day ahead as just that, ONE day at a time. Enjoying the little moments, celebrating the big moments, and learning that throughout it all one thing remains the most important- family.
Thank you all for being on this journey with us throughout Dad's brain cancer fight. We have been blessed with countless prayers and an amazing support system of friends & family- we could not have survived these last four years without you all.
Dad's next MRI isn't until after Thanksgiving, so until then we will continue on living and loving each day with Dad. Dad's last MRI showed no signs of tumor (REMISSION!) and he is still off of all his treatments- no chemotherapy or Avastin. Thank you all again, and thanks for helping us BTHO Brain Cancer!
Congrats to Dad- a FOUR Year Brain Cancer Survivor!
Friday, August 18, 2017
Happy Birthday Lar! 8/18/2017
Today marks Dad's 63rd birthday, and 3 years & 10 months as a brain cancer survivor! Clearly we have A LOT to be celebrating!
Dad is still off of all treatments, as it's been one year since we decided to stop his chemotherapy- one amazing year of Dad not having to take those dreaded chemo pills that made him sick for weeks, one amazing year with MRIs that have shown no signs of cancer, and one amazing year celebrating each little moment in our lives. It's crazy to think when this whole journey started Dad was not yet a "Paw-Paw", and now he's got THREE little ones that he gets to spoil.
Dad's cancer is unpredictable, and we are all too aware that at any moment Dad can show signs of growth or an MRI can show his tumor returning- but we are also all too aware of how LUCKY we are. It's something we do not take lightly, as we appreciate the little things, and celebrate Dad each chance we get.
So as usual, here's my Birthday Letter to the best Daddy in the world.
Dad,
Today we celebrate your 63rd birthday. And on this day, I thought I would share with you my birthday wishes to you:
Dad, I wish for there to many more birthdays for us to celebrate- as Luke, Hallie & Reid have so much to learn from you as they get older. Don't worry, you can start the stories with "This one time your Aunt Stevie...", as I know I'm a good example of what NOT to do a lot of the time.
Dad, I wish for you to try and grasp the true impact you've made on this crazy world- as your brain cancer fight has inspired so many others, especially me.
Dad, I wish for you to know how proud we all are of you- through the most difficult times in your life, you've managed to smile, push forward, and never complain.
And Dad, my final wish is that you continue to enjoy each day- that you never let your cancer journey define you, instead take cancer as just a chapter in your amazing book of life.
Wishing you many more birthdays!
Whitney
Y'all, as I write this letter I could have never imagined in October of 2013 getting to celebrate Dad's 63rd birthday- but this just proves that God's plan is so much bigger than cancer. It just proves that we serve a pretty amazing God, one that has "designed us to walk through this world in trusting dependence on Him. He lovingly go before us and opens up the way, carefully preparing the path we will follow. He removes many dangers and obstacles from the road ahead, and helps us handle the difficulties that remain."
Knowing that life is all too short, knowing that we are truly the lucky ones in this battle against cancer, knowing all these things makes birthdays just a little bit sweeter. Hugging Dad extra tight today, and celebrating him a little bit more on this special day.
Dad is still off of all treatments, as it's been one year since we decided to stop his chemotherapy- one amazing year of Dad not having to take those dreaded chemo pills that made him sick for weeks, one amazing year with MRIs that have shown no signs of cancer, and one amazing year celebrating each little moment in our lives. It's crazy to think when this whole journey started Dad was not yet a "Paw-Paw", and now he's got THREE little ones that he gets to spoil.
Dad's cancer is unpredictable, and we are all too aware that at any moment Dad can show signs of growth or an MRI can show his tumor returning- but we are also all too aware of how LUCKY we are. It's something we do not take lightly, as we appreciate the little things, and celebrate Dad each chance we get.
So as usual, here's my Birthday Letter to the best Daddy in the world.
Dad,
Today we celebrate your 63rd birthday. And on this day, I thought I would share with you my birthday wishes to you:
Dad, I wish for there to many more birthdays for us to celebrate- as Luke, Hallie & Reid have so much to learn from you as they get older. Don't worry, you can start the stories with "This one time your Aunt Stevie...", as I know I'm a good example of what NOT to do a lot of the time.
Dad, I wish for you to try and grasp the true impact you've made on this crazy world- as your brain cancer fight has inspired so many others, especially me.
Dad, I wish for you to know how proud we all are of you- through the most difficult times in your life, you've managed to smile, push forward, and never complain.
And Dad, my final wish is that you continue to enjoy each day- that you never let your cancer journey define you, instead take cancer as just a chapter in your amazing book of life.
Wishing you many more birthdays!
Whitney
Y'all, as I write this letter I could have never imagined in October of 2013 getting to celebrate Dad's 63rd birthday- but this just proves that God's plan is so much bigger than cancer. It just proves that we serve a pretty amazing God, one that has "designed us to walk through this world in trusting dependence on Him. He lovingly go before us and opens up the way, carefully preparing the path we will follow. He removes many dangers and obstacles from the road ahead, and helps us handle the difficulties that remain."
Knowing that life is all too short, knowing that we are truly the lucky ones in this battle against cancer, knowing all these things makes birthdays just a little bit sweeter. Hugging Dad extra tight today, and celebrating him a little bit more on this special day.
Wednesday, August 2, 2017
Finding Purpose In Pain. 8/2/2017
"God promises us pain."
Words I keep trying to repeat over and over again.
This week my heart has been so heavy with the news of two brain cancer fighters, both who lost their battle way too early.
I was reconnected with one of these fighters just this year, in January to be exact, with a message that said, "I want to let you know that reading your blogs have really been helping a lot. Especially my parents."
Our conversations were fairly constant over these last months, reaching out to ask how treatments were going, letting her know our family was praying so very hard, and just being there to provide some sort of hope for her.
And as much as I tried to constantly lift her spirits and provide her hope, it was really the complete opposite, as each and every conversation left me being reminded that God truly gives his toughest battles to his strongest soldiers. Each conversation reminded me that faith can truly be bigger than any fear.
Her words spoke volumes of her attitude, strength and faith, as here are just a few words from our conversations over the last few months:
"I have been blessed with amazing doctors, my family and friends have been so amazing through everything."
"Things are going well other than that. Trying to stay healthy and find joy in the little things...It's great to hear that your dad is doing SO well!..."
"We are all gonna beat it together! And your family has, and will continue, to be in our prayers as well!"
Each time, each conversation had me thinking- wow, I hope a little bit of her strength, her faith, and her will to fight rubs off on me so I can help Dad through his battle.
You know, so many people go through this world- living day by day, not truly understanding how important each and every moment really is, never really making a great impact on this world. And yet, here was this young lady, making such a HUGE impact in her short time here. Impacting others through her fight.
Matt Chandler, a pastor in Dallas and a brain cancer survivor, has said "Suffering. Difficulty. It should surprise no one." And while this is true, I just wish it didn't hurt so bad.
Asking for a few extra prayers as two families battle through the suffering after the fight is over- the suffering of losing their loved one to this terrible disease. We continue to hope and pray for a cure so no family has to experience the pain of losing someone to cancer.
I'll be hugging Dad a little bit tighter, and I'll make sure I soak up those precious moments with him a little bit more- I'm once again reminded that life is all too short.
Wednesday, July 26, 2017
4 Month MRI Update. 7/26/2017
It's been 4 months since our last MRI. 4 months?!?
We were spending hours at the Cancer Clinic every two weeks for Avastin treatment and appointments with Dr. Fleener- I have joked before that the Cancer Clinic became our second home- And now, it's been weird not being there for 4 months.
Dad's MRI was GREAT! He is still considered to be in remission, as there is no sign of tumor or any indication that the cancer is back. Y'all, God is very good.
My devotional today was just perfect, as when I'm asked what is our "secret" to Dad's success- my response is always our faith and the amazing power of prayer.
(Oh, and the countless people supporting us on this journey- friends and family, y'all have been AMAZING!)
"I broaden the path beneath you so that your ankles do not turn. This shows how intricately I am involved in your life-journey. I know exactly what is before you, and I can alter the path ahead of you to make your way easier. Sometimes I enable you to see what I have done on your behalf...My work to widen the way before you demonstrates how lovingly I am involved in your life...From your perspective, My workings are often mysterious. I do not protect you- or anyone- from all adversities...you will never have to suffer alone. I have promised: I am with you always!"
And with us always He has been.
Dad will have another MRI in 4 months, which should fall after Thanksgiving. So between now and then we have lots to celebrate- Dad's birthday is coming up in August and his 4 year cancer-versary in October.
Y'all, we are coming up on 4 years! How crazy!
I truly never thought we would have this much time with Dad, as we were given those same scary statistics that all glioblastoma patients get- but it is clear that God is using Dad for a much greater purpose than we could all ever imagine here on Earth.
I can't even begin to count the number of MRI's Dad has had over these last (almost!) 4 years, but what doesn't change for each MRI is the gut-wrenching feeling I get while waiting for those results. Scan-anxiety is such a real thing, as you wait for those words from the doctor- words that could make life change in an instant.
We realize we are some of the "lucky ones" when it comes to this beast of glioblastoma, and that's something we do not take lightly. We continue to support brain cancer research, bring awareness to a disease that has so little funding and research, and provide HOPE to others with this diagnosis.
We can't thank you all enough for continuing to love, support, and pray for us throughout this journey. We wouldn't have survived it all without friends and family throughout each step of the way.
We've had good MRI's, and we've had bad MRI's, but one thing that remains constant is Dad's unbelievable strength, determination, and faith in this journey- cancer truly met his match when it tried to get to Dad.
Thank you all again, and thanks for helping us BTHO Brain Cancer!
We were spending hours at the Cancer Clinic every two weeks for Avastin treatment and appointments with Dr. Fleener- I have joked before that the Cancer Clinic became our second home- And now, it's been weird not being there for 4 months.
Dad's MRI was GREAT! He is still considered to be in remission, as there is no sign of tumor or any indication that the cancer is back. Y'all, God is very good.
My devotional today was just perfect, as when I'm asked what is our "secret" to Dad's success- my response is always our faith and the amazing power of prayer.
(Oh, and the countless people supporting us on this journey- friends and family, y'all have been AMAZING!)
"I broaden the path beneath you so that your ankles do not turn. This shows how intricately I am involved in your life-journey. I know exactly what is before you, and I can alter the path ahead of you to make your way easier. Sometimes I enable you to see what I have done on your behalf...My work to widen the way before you demonstrates how lovingly I am involved in your life...From your perspective, My workings are often mysterious. I do not protect you- or anyone- from all adversities...you will never have to suffer alone. I have promised: I am with you always!"
And with us always He has been.
Dad will have another MRI in 4 months, which should fall after Thanksgiving. So between now and then we have lots to celebrate- Dad's birthday is coming up in August and his 4 year cancer-versary in October.
Y'all, we are coming up on 4 years! How crazy!
I truly never thought we would have this much time with Dad, as we were given those same scary statistics that all glioblastoma patients get- but it is clear that God is using Dad for a much greater purpose than we could all ever imagine here on Earth.
I can't even begin to count the number of MRI's Dad has had over these last (almost!) 4 years, but what doesn't change for each MRI is the gut-wrenching feeling I get while waiting for those results. Scan-anxiety is such a real thing, as you wait for those words from the doctor- words that could make life change in an instant.
We realize we are some of the "lucky ones" when it comes to this beast of glioblastoma, and that's something we do not take lightly. We continue to support brain cancer research, bring awareness to a disease that has so little funding and research, and provide HOPE to others with this diagnosis.
We can't thank you all enough for continuing to love, support, and pray for us throughout this journey. We wouldn't have survived it all without friends and family throughout each step of the way.
We've had good MRI's, and we've had bad MRI's, but one thing that remains constant is Dad's unbelievable strength, determination, and faith in this journey- cancer truly met his match when it tried to get to Dad.
Thank you all again, and thanks for helping us BTHO Brain Cancer!
Wednesday, July 12, 2017
A New Diagnosis. My Advice.
Recently, it seems as though I've received the same message from friends:
"Someone I know just got diagnosed with brain cancer, the same type as your dad. Could I give them your contact information if they want to talk?"
And as you all can imagine, my heart breaks to see this message and it's always no questions asked if they can have my contact information- I give my email, my cell phone, my address- heck come visit me at my house! Because during those first few weeks of Dad's diagnosis, we would have given anything to have someone to talk to, to help figure out what we should do next.
But because I know others are not nearly as open as we have been, some have such a hard time talking about a new diagnosis- chemotherapy, radiation, MRI's, (and let's not forget) the horrible results when you google "glioblastoma" or even "brain cancer"- I thought I would share some advice I would give to anyone newly diagnosed.
My first piece of advice- do NOT google "Glioblastoma". The internet is filled with a lot of information- and I've used the internet as a great resource for treatments for Dad, but it took me a very long time after his diagnosis to actually google "glioblastoma", and I'm so glad I didn't right away. In a time where you may feel so incredibly discouraged by a cancer diagnosis, I encourage you to instead look to those who have BEAT this disease as a source of HOPE. You'll find that many who are long term survivors are so busy LIVING that they don't have time to post anything negative on the internet.
My next piece of advice, lean on your faith or find your faith. This advice is so much easier to write than it is to live sometimes, as my faith was truly tested when Dad was diagnosed. I struggled with the "why us?", and "how could You do something so bad to MY Dad?"- but, if you've read my blog before, you know that these questions filled with hate, turned into prayers filled with thankfulness and love. I can't imagine this journey without my faith- knowing that walking hand in hand with me is this amazing God that is SO much bigger than this cancer.
Another piece of advice, find a doctor you trust 100%. From the moment Dr. Fleener walked into Dad's ICU room, we knew she was OUR doctor. I know enough about upcoming treatments to understand some of the options Dr. Fleener discusses with us during appointments, but we lean on her to guide us through Dad's cancer journey. Again, the internet is a great resource, but having a great doctor is an even better resource. Find someone you're comfortable with, because you'll be sharing all sorts of things with them that you didn't even know could be a side effect of treatment and radiation.
And my final BIG piece of advice- take it all ONE day at a time (heck, there were some days that we took it just 5 minutes at a time). Because there will be really good days in your cancer journey, and there will be some truly bad days- but the good will out weigh the bad, this I can promise you. Find a support system to help you take it all one day at a time, and continue to LIVE. My mom always says, "We will not wait to die, we will continue to live." and she takes that to heart each and every day.
As one of my favorite devotional reads:
"Follow me one step at a time. That is all I require of you. You see huge mountains looming, and you start wondering how you're going to scale those heights...But you don't know what will happen today, much less tomorrow...If I do lead you up cliffs, I will equip you thoroughly for the strenuous climb. Walk by faith, not by sight."
For those who have been recently diagnosed, know that on this journey you are not alone, as you've got lots of other brain cancer families that have walked this path before you and are here for you to lean on, cry with, and be a support system of those that just get it.
The chemotherapy sucks. The radiation sucks. The Avastin sucks. And the medical bills all suck. But I promise there is so much GOOD in this journey, GOOD that far outweighs the bad- and sometimes you don't have to look that hard to see it all.
You'll find family and friends that go above and beyond, you'll even find strangers doing the same- reminding you that throughout some of our most difficult times, we do have something to be thankful for.
Continue fighting through this journey, remember that one bad MRI is not defining of your cancer journey, and never give up the HOPE for a cure.
"Someone I know just got diagnosed with brain cancer, the same type as your dad. Could I give them your contact information if they want to talk?"
And as you all can imagine, my heart breaks to see this message and it's always no questions asked if they can have my contact information- I give my email, my cell phone, my address- heck come visit me at my house! Because during those first few weeks of Dad's diagnosis, we would have given anything to have someone to talk to, to help figure out what we should do next.
But because I know others are not nearly as open as we have been, some have such a hard time talking about a new diagnosis- chemotherapy, radiation, MRI's, (and let's not forget) the horrible results when you google "glioblastoma" or even "brain cancer"- I thought I would share some advice I would give to anyone newly diagnosed.
My first piece of advice- do NOT google "Glioblastoma". The internet is filled with a lot of information- and I've used the internet as a great resource for treatments for Dad, but it took me a very long time after his diagnosis to actually google "glioblastoma", and I'm so glad I didn't right away. In a time where you may feel so incredibly discouraged by a cancer diagnosis, I encourage you to instead look to those who have BEAT this disease as a source of HOPE. You'll find that many who are long term survivors are so busy LIVING that they don't have time to post anything negative on the internet.
My next piece of advice, lean on your faith or find your faith. This advice is so much easier to write than it is to live sometimes, as my faith was truly tested when Dad was diagnosed. I struggled with the "why us?", and "how could You do something so bad to MY Dad?"- but, if you've read my blog before, you know that these questions filled with hate, turned into prayers filled with thankfulness and love. I can't imagine this journey without my faith- knowing that walking hand in hand with me is this amazing God that is SO much bigger than this cancer.
Another piece of advice, find a doctor you trust 100%. From the moment Dr. Fleener walked into Dad's ICU room, we knew she was OUR doctor. I know enough about upcoming treatments to understand some of the options Dr. Fleener discusses with us during appointments, but we lean on her to guide us through Dad's cancer journey. Again, the internet is a great resource, but having a great doctor is an even better resource. Find someone you're comfortable with, because you'll be sharing all sorts of things with them that you didn't even know could be a side effect of treatment and radiation.
And my final BIG piece of advice- take it all ONE day at a time (heck, there were some days that we took it just 5 minutes at a time). Because there will be really good days in your cancer journey, and there will be some truly bad days- but the good will out weigh the bad, this I can promise you. Find a support system to help you take it all one day at a time, and continue to LIVE. My mom always says, "We will not wait to die, we will continue to live." and she takes that to heart each and every day.
As one of my favorite devotional reads:
"Follow me one step at a time. That is all I require of you. You see huge mountains looming, and you start wondering how you're going to scale those heights...But you don't know what will happen today, much less tomorrow...If I do lead you up cliffs, I will equip you thoroughly for the strenuous climb. Walk by faith, not by sight."
For those who have been recently diagnosed, know that on this journey you are not alone, as you've got lots of other brain cancer families that have walked this path before you and are here for you to lean on, cry with, and be a support system of those that just get it.
The chemotherapy sucks. The radiation sucks. The Avastin sucks. And the medical bills all suck. But I promise there is so much GOOD in this journey, GOOD that far outweighs the bad- and sometimes you don't have to look that hard to see it all.
You'll find family and friends that go above and beyond, you'll even find strangers doing the same- reminding you that throughout some of our most difficult times, we do have something to be thankful for.
Continue fighting through this journey, remember that one bad MRI is not defining of your cancer journey, and never give up the HOPE for a cure.
Tuesday, July 11, 2017
4th of July. Dad Update 7/11/2017
Ok, as usual, I'm a little behind in my blog updates- but as I've said before, no news is usually really good news.
The Glenz family celebrated the 4th of July with lots of parties, a snake in the car, and a minor grass fire. I mean, we clearly like to keep it interesting.
(Don't worry, we found the snake and put out the small grass fire all before the day was done.)
Dad was a BIG help around the house, helping get the yard ready for our little party and the inside of the house. He really doesn't realize how awesome it is seeing him out mowing grass. It's amazing how far he's come in his brain cancer journey.
Here are just a few pictures from the celebrations:
We take each of these little celebrations as such a BIG blessing throughout Dad's cancer journey. With another MRI quickly approaching, we continue to be thankful for each day and pray Dad's MRI remains the same.
Thank you all for your continued thoughts and prayers, and thank you all for helping us BTHO Brain cancer!
The Glenz family celebrated the 4th of July with lots of parties, a snake in the car, and a minor grass fire. I mean, we clearly like to keep it interesting.
(Don't worry, we found the snake and put out the small grass fire all before the day was done.)
Dad was a BIG help around the house, helping get the yard ready for our little party and the inside of the house. He really doesn't realize how awesome it is seeing him out mowing grass. It's amazing how far he's come in his brain cancer journey.
Here are just a few pictures from the celebrations:
Luke & Chad enjoying the fireworks at Independence
Baby Reid having a blast at his first 4th of July
Mom & Dad enjoying the beautiful weather, and Mom enjoying a few glasses of wine
And Miss Hallie Rae celebrating her 1st Birthday on July 4th
We take each of these little celebrations as such a BIG blessing throughout Dad's cancer journey. With another MRI quickly approaching, we continue to be thankful for each day and pray Dad's MRI remains the same.
Thank you all for your continued thoughts and prayers, and thank you all for helping us BTHO Brain cancer!
Thursday, June 15, 2017
Father's Day 2017. 6/15/2017
I think back to October 5, 2013 all the time. The day of Dad's seizure. And then I think back to that cold hospital room where we heard the news. Cancer. I feared Thanksgiving and Christmas where Dad wasn't there, I feared birthdays and special moments without him, and I feared a Father's Day without celebrating the best Dad in the world.
And it's amazing, because when I think back on this and then pull out my devotional...I find God speaking to my heart so clearly:
"Apart from Me you can do nothing. On days when the tasks before you seem overwhelming, remember this: I am with you, ready to help. Take a moment to rest in My loving Presence. Whisper: Surely the Lord is in this place."
Well, in honor of my amazing Dad, here's my Father's Day letter:
Dad,
You probably don't remember this, as those days after your seizure were a whirlwind, but there was a conversation, a moment that to this day gives me chills. It was the moment I knew I had the most selfless Dad in the entire world. It was the moment that I realized I was so blessed that God chose you for me.
We received the diagnosis: Brain Cancer. And as the doctor shared with us what was going on in your brain, and as my brain went in 100 different directions, your response was one that was calm, one that I will never forget. Instead of asking the doctor "what's next?", or "why me?", you responded with a question: "Can I give this to my girls?" My heart stopped.
So to the most selfless man in the world, let me share with you why you're the most amazing Dad a girl could ever ask for.
You've managed to take each day with a house filled with women in stride. You witnessed your girls fail a bit when it came to doing some things that you do so very well...like when I mowed grass and put the blade ALL the way down and (as you said) "mowed dirt". Or that time Meghan and Mom thought they would be super helpful and mow while you were at work, only to realize they put the wrong type of fuel in the lawnmower.
Or maybe that time you came into the garage to find that Genna "forgot" to put the garage door up and backed right into it. Or it could be the time that Mom locked herself out of her car, and the answering machine happened to record y'alls entire message...I think we still get a kick out of that conversation.
There's a common theme here, one in which one of your girls manage to "mess things up a bit", and you responded with your same patience and determination that you handle everything in life.
I can count on one hand the times you've yelled at me, and looking back, I think you could have yelled a bit more (seriously, I was kinda a terrible child).
You've always been the Dad that went to every softball game (heck you were usually the coach), and at the end of the game, regardless if we won or lost, we talked about what we could have done better. You were always focused on us improving and doing our absolute best.
We are so lucky that God chose YOU to be our Dad. To walk with us through the good, and bad times, to teach us that patience and determination can really fix most situations, and throughout it all doing your absolute best is big part of life.
So this Father's Day, know how much we appreciate YOU and all the things that you continue to do for us girls (okay, and now Luke & Reid). Here's to many more Father's Days and everyday with YOU!
Much Love, (Your favorite daughter)
Whitney
And it's amazing, because when I think back on this and then pull out my devotional...I find God speaking to my heart so clearly:
"Apart from Me you can do nothing. On days when the tasks before you seem overwhelming, remember this: I am with you, ready to help. Take a moment to rest in My loving Presence. Whisper: Surely the Lord is in this place."
Well, in honor of my amazing Dad, here's my Father's Day letter:
Dad,
You probably don't remember this, as those days after your seizure were a whirlwind, but there was a conversation, a moment that to this day gives me chills. It was the moment I knew I had the most selfless Dad in the entire world. It was the moment that I realized I was so blessed that God chose you for me.
We received the diagnosis: Brain Cancer. And as the doctor shared with us what was going on in your brain, and as my brain went in 100 different directions, your response was one that was calm, one that I will never forget. Instead of asking the doctor "what's next?", or "why me?", you responded with a question: "Can I give this to my girls?" My heart stopped.
So to the most selfless man in the world, let me share with you why you're the most amazing Dad a girl could ever ask for.
You've managed to take each day with a house filled with women in stride. You witnessed your girls fail a bit when it came to doing some things that you do so very well...like when I mowed grass and put the blade ALL the way down and (as you said) "mowed dirt". Or that time Meghan and Mom thought they would be super helpful and mow while you were at work, only to realize they put the wrong type of fuel in the lawnmower.
Or maybe that time you came into the garage to find that Genna "forgot" to put the garage door up and backed right into it. Or it could be the time that Mom locked herself out of her car, and the answering machine happened to record y'alls entire message...I think we still get a kick out of that conversation.
There's a common theme here, one in which one of your girls manage to "mess things up a bit", and you responded with your same patience and determination that you handle everything in life.
I can count on one hand the times you've yelled at me, and looking back, I think you could have yelled a bit more (seriously, I was kinda a terrible child).
You've always been the Dad that went to every softball game (heck you were usually the coach), and at the end of the game, regardless if we won or lost, we talked about what we could have done better. You were always focused on us improving and doing our absolute best.
We are so lucky that God chose YOU to be our Dad. To walk with us through the good, and bad times, to teach us that patience and determination can really fix most situations, and throughout it all doing your absolute best is big part of life.
So this Father's Day, know how much we appreciate YOU and all the things that you continue to do for us girls (okay, and now Luke & Reid). Here's to many more Father's Days and everyday with YOU!
Much Love, (Your favorite daughter)
Whitney
Friday, June 9, 2017
Hi, Yes We Are Still Here. Dad Update 6/9/2017
Hi, yes sorry I realized today that my last post was when my adorable nephew was born, and that's been ALMOST one month now- wow how time flies when you're having fun!
We have been staying busy, as the summer days have proven to be even MORE busy than we could have imagined- between graduation parties, weddings, baptisms, and family vacations- we have been running from one thing to the other!
Dad continues to feel well, as it's been almost a year since he stopped chemotherapy! Our next MRI isn't scheduled until the end of July, and right now that seems so far away! Y'all, I can't even begin to share how "weird" it is to not have appointments at the Cancer Clinic at least once a month- but it's a "weird" that I will gladly take!
Dad was recently featured on the Cancer Clinic's Facebook page in honor of Brain Cancer Awareness Month.
We have been staying busy, as the summer days have proven to be even MORE busy than we could have imagined- between graduation parties, weddings, baptisms, and family vacations- we have been running from one thing to the other!
Dad continues to feel well, as it's been almost a year since he stopped chemotherapy! Our next MRI isn't scheduled until the end of July, and right now that seems so far away! Y'all, I can't even begin to share how "weird" it is to not have appointments at the Cancer Clinic at least once a month- but it's a "weird" that I will gladly take!
Dad was recently featured on the Cancer Clinic's Facebook page in honor of Brain Cancer Awareness Month.
As always, I'm so incredibly proud of these two- their fight, faith and unconditional love continues to inspire us each day.
So that's all for now, thank you all for your love and support, and thanks for helping us BTHO Brain Cancer!
Wednesday, May 17, 2017
Dad Update. 5/17/2017
It's been a busy week in the Glenz household. Dad's been out mowing & shredding, oh and taking care of a fairly LARGE garden (not exactly sure how we are going to eat all those veggies!), while Mom is continuing on with staying ever so busy- running from one thing to the next, and making sure Dad is along for the ride.
And then we welcomed a new little one to our family
And then we welcomed a new little one to our family
Mr. Reid Eliot Windam
Born on 5/12/2017, 8 lbs 1oz, 20.5 inches long- he's a BIG boy!
Mom, Dad and baby are all doing well!
These grandbabies have been such a JOY to Dad (& Mom!), as it has given Dad something to look forward to each day. We are so thankful for Luke, Hallie & Reid!
Thank you all for the continued thoughts and prayers, it's still unreal to us that over 3.5 years later, Dad is with us and doing so well! Thank you all for helping us BTHO Brain Cancer!
Tuesday, May 9, 2017
My Mother's Day Letter.
With Mother's Day approaching this weekend, it's given me a perfect time to sit and reflect on the amazing Mom I have in my life, because without her we would have all crumbled so long ago.
So here's my little 'Thank You'.
Dear Mom,
On this Mother's Day it's easy to thank you for all the ways you've been the rock of our family these last 3.5 years, but I think this Mother's Day we should go back a bit farther- because you've really been the rock of our family far before Dad's diagnosis.
Thank you Mom for your constant love and support, for listening to me cry in college when I got my first failing grade, and reminding me that you are proud when we do our best, you just weren't sure if that was my best. By the way, you may have been right. (I still blame Hurricane Harry's)
Thank you Mom for teaching me that a good glass of wine can make any evening just a little bit better, especially when you're sharing that wine with family and friends. And thank you for constantly reminding me to "stay in control"...although I'm not sure why you keep doing that. ;)
Thank you Mom for allowing me live with you and Dad following his diagnosis, for allowing me take Dad to treatments, yell at insurance companies for you, and witness the true strength of both you and Dad throughout this journey. You've both inspired me in ways that words can't even begin to describe.
Thank you Mom for showing me that having faith in a journey that feels so incredibly broken can help you through some of the darkest of times. And this same faith can help you truly appreciate the small things in life.
And thank you for being such an incredible friend to each of us girls, for being the one we call when all seems to be going wrong, and the first one we call when we have something to celebrate. You always seem to find the right words to say to help us through each day.
So on this Mother's Day, know that you are so very loved for all that you do for each of us and that we are so proud to call you "Mom", and most importantly "friend".
Love,
Your Favorite Daughter (ok just kidding...but seriously)
Whitney
And thank you for being such an incredible friend to each of us girls, for being the one we call when all seems to be going wrong, and the first one we call when we have something to celebrate. You always seem to find the right words to say to help us through each day.
So on this Mother's Day, know that you are so very loved for all that you do for each of us and that we are so proud to call you "Mom", and most importantly "friend".
Love,
Your Favorite Daughter (ok just kidding...but seriously)
Whitney
Thursday, April 27, 2017
Dad Update. 4/27/2017
It's a "Dad Update" that involves very little updates- which is always a good thing!
We last met with Dr. Fleener on March 22, where Dr. Fleener left us with a follow up appointment with Dad's general physician and the words, "Now that we don't have to worry about a tumor, we've gotta worry about other things that can happen when you get older!"
So we did some blood work and it looks like all of Dad's counts are right in line where they should be, and his blood pressure continues to be monitored to ensure it's staying in a normal range.
Since then, Mom and Dad have completely re-done the front yard, are working on a garden, and constantly outside mowing and working in the flower beds (even killing a pretty good sized snake one day!). Just yesterday Mom told me Dad was out on the shredder while she worked in the back yard. Y'all, God is so very good.
Our next MRI is scheduled for July, which seems so very far away- yet I know it will sneak up on us before we know it. So until then, we plan to enjoy the nice weather and be so very thankful for each and every day.
Yesterday I received a message from another family impacted by brain cancer. A message asking for help, to be a contact for someone and provide HOPE to them. I immediately called Mom.
I wanted to share with Mom this message because often times we are so boggled down in the pain and the suffering that we've experienced these last 3.5 years. Sometimes we find ourselves thinking back to what life was like before Dad's diagnosis, instead of focusing on how far we've come.
I was reminded in that moment (and shared with Mom these same thoughts!) that Dad's pain and suffering has such GREAT purpose- and how amazing it is that we are able to witness this purpose each time another brain cancer family reaches out to us. We've found the purpose in our pain, to be a resource to others and walk hand in hand with them throughout this journey.
Now believe me, I don't wish this process on anyone, but it's given me a perspective that many will never have. I tell Dad I love him every day, I go by their house often (probably more often than my parents would like!), and I constantly remind myself how exceptionally lucky we are.
Dad doesn't always realize it, but he's the true backbone and strength of our family. He continues to inspire people that he's never even met. He continues to inspire each of us each day.
I'm not sure how he does it. I'm not sure how he managed through two brain surgeries, countless rounds of chemotherapy, six intense weeks of radiation, and all of the physical & speech therapy, but he managed it pretty darn well. No complaints. No apprehension. He took it one day at a time, one step at a time, and leaned on this incredible faith through it all.
Reflecting today on how good God really is, how through pain there is purpose, and through suffering there is strength.
Thank you all for continuing on this journey with us, as we continue fighting to BTHO Brain Cancer.
We last met with Dr. Fleener on March 22, where Dr. Fleener left us with a follow up appointment with Dad's general physician and the words, "Now that we don't have to worry about a tumor, we've gotta worry about other things that can happen when you get older!"
So we did some blood work and it looks like all of Dad's counts are right in line where they should be, and his blood pressure continues to be monitored to ensure it's staying in a normal range.
Since then, Mom and Dad have completely re-done the front yard, are working on a garden, and constantly outside mowing and working in the flower beds (even killing a pretty good sized snake one day!). Just yesterday Mom told me Dad was out on the shredder while she worked in the back yard. Y'all, God is so very good.
Our next MRI is scheduled for July, which seems so very far away- yet I know it will sneak up on us before we know it. So until then, we plan to enjoy the nice weather and be so very thankful for each and every day.
Yesterday I received a message from another family impacted by brain cancer. A message asking for help, to be a contact for someone and provide HOPE to them. I immediately called Mom.
I wanted to share with Mom this message because often times we are so boggled down in the pain and the suffering that we've experienced these last 3.5 years. Sometimes we find ourselves thinking back to what life was like before Dad's diagnosis, instead of focusing on how far we've come.
I was reminded in that moment (and shared with Mom these same thoughts!) that Dad's pain and suffering has such GREAT purpose- and how amazing it is that we are able to witness this purpose each time another brain cancer family reaches out to us. We've found the purpose in our pain, to be a resource to others and walk hand in hand with them throughout this journey.
Now believe me, I don't wish this process on anyone, but it's given me a perspective that many will never have. I tell Dad I love him every day, I go by their house often (probably more often than my parents would like!), and I constantly remind myself how exceptionally lucky we are.
Dad doesn't always realize it, but he's the true backbone and strength of our family. He continues to inspire people that he's never even met. He continues to inspire each of us each day.
I'm not sure how he does it. I'm not sure how he managed through two brain surgeries, countless rounds of chemotherapy, six intense weeks of radiation, and all of the physical & speech therapy, but he managed it pretty darn well. No complaints. No apprehension. He took it one day at a time, one step at a time, and leaned on this incredible faith through it all.
Reflecting today on how good God really is, how through pain there is purpose, and through suffering there is strength.
Thank you all for continuing on this journey with us, as we continue fighting to BTHO Brain Cancer.
Monday, April 10, 2017
Dad's 3.5 Year Cancer-versary. 4/10/2017
Dad celebrated his 3.5 year cancer-versary on April 5, 2017 (ok so I'm a few days late!), but what an incredible 3.5 years it has been!
The updates on the blog seem to be spaced out more, and that's really because Dad is doing so well! He is no longer taking any chemotherapy, or Avastin, and his blood pressure issues are almost completely gone. So his days are now filled with outside activities- helping Mom in the garden, mowing grass, and running out to their land in Burton to feed fish and check on the property. Sounds pretty amazing, right?
The two year survival rate for someone with Glioblastoma is 27%. I sometimes think of that statistic and sit in awe at how amazing Dad has continued to fight throughout these last 3.5 years.
The overwhelming amount of strength Dad has shown throughout it all has directly impacted so many- including me- as I truly believe Dad's journey is not complete because there is a far bigger plan for him here in the physical world.
These last 3.5 years have been some of the most difficult times we have experienced as a family, but also some of the most rewarding. We look back now and can't believe we survived it all- the hospital stays, the bad MRIs, and the countless trips to the Oncologist, but we did, we survived it all by leaning on one another, and our faith.
"Your struggles are part of a much larger battle, and the way you handle them can contribute to outcomes with eternal significance. When you respond to your troubles by trusting Me and praying with thanksgiving, you glorify Me."
I have always said there is true purpose in pain, because without repeating that over and over again, I may have gone absolutely crazy throughout it all.
Thank you all who continue to follow our story and who ask about Dad, it's been a blessing to see the number of people Dad has continued to impact throughout our journey.
And as always, thank you all for helping us BTHO Brain Cancer!
The updates on the blog seem to be spaced out more, and that's really because Dad is doing so well! He is no longer taking any chemotherapy, or Avastin, and his blood pressure issues are almost completely gone. So his days are now filled with outside activities- helping Mom in the garden, mowing grass, and running out to their land in Burton to feed fish and check on the property. Sounds pretty amazing, right?
The two year survival rate for someone with Glioblastoma is 27%. I sometimes think of that statistic and sit in awe at how amazing Dad has continued to fight throughout these last 3.5 years.
The overwhelming amount of strength Dad has shown throughout it all has directly impacted so many- including me- as I truly believe Dad's journey is not complete because there is a far bigger plan for him here in the physical world.
These last 3.5 years have been some of the most difficult times we have experienced as a family, but also some of the most rewarding. We look back now and can't believe we survived it all- the hospital stays, the bad MRIs, and the countless trips to the Oncologist, but we did, we survived it all by leaning on one another, and our faith.
"Your struggles are part of a much larger battle, and the way you handle them can contribute to outcomes with eternal significance. When you respond to your troubles by trusting Me and praying with thanksgiving, you glorify Me."
I have always said there is true purpose in pain, because without repeating that over and over again, I may have gone absolutely crazy throughout it all.
Thank you all who continue to follow our story and who ask about Dad, it's been a blessing to see the number of people Dad has continued to impact throughout our journey.
And as always, thank you all for helping us BTHO Brain Cancer!
Monday, April 3, 2017
Run For The Rose. Dad Update 4/3/2017
Our 4th trip to Run For The Rose has come and gone, and man, what an incredible event it was!
I'm still processing donations, but as of right now it looks like we will have $6,130 this year alone. INCREDIBLE!
Which means in the last four years we've donated $27,330! And that has everything to do with the amazing friends and family we have in our lives, those that have supported us each step of the way. Thank you!
And on top of having donated such an incredible amount of money, this year alone we brought 90 people to the run in Dad's honor. 90 people who have exceptionally busy lives, but took time out of their busy weekend to join us for an event that means so much to my entire family.
The rain. The forecast wasn't just rain, but hail- tornadoes- flooding. Imagine the absolute worst possible running conditions, that's what the forecast included.
And I looked at that forecast and I was so disappointed- but if I've learned anything these last 3.5 years it's that we serve a pretty amazing God- so I said a few prayers (ok I may have talked to him constantly once I found out about the rain!) and it went a little like this:
"Hey God, so I see there's a little bit of rain in the forecast for Sunday. And I'm working so hard on reminding myself that your plan is absolutely perfect, and there is always a purpose to your work. So if the weather is so bad that the run has to be cancelled, I will understand and remind myself that there is a reason for it all. But, I do know you've got a little pull up there, so if you don't mind moving that rain out of Houston, I would really appreciate it."
Sometimes I think God laughs a little from our talks.
And I repeated this prayer over and over again. And y'all, no rain. Not a drop! Do we serve an awesome God or what?!?
The race was incredible. As I reached the end of the race, I looked ahead and saw a brain cancer survivor ahead of me (they each wear a special colored hat during the run), and that's when I knew there was no way I was walking or stopping- because if he could run this race, by all means I could do the same.
The anticipation and concern over the weather was such a perfect comparison to our lives these last 3.5 years. With a beast like Glioblastoma, the forecast is always the worst of the worst- similar to what the weather was predicting yesterday. And I learned early on in Dad's cancer journey that we can not fear bad news, but confidently TRUST- and as anxious and stressed as I was going into the run (and on most MRI days for Dad), I try to remind myself that it is out of my control, and in the control of Him. And then when God's absolute glory shines through- whether it be answered prayers for clear skies for the run, or a great MRI- the appreciation I have for His extra hand in it all is so incredibly great. As I took each step of those 3.1 miles, I just kept thanking God over and over again for another year at the run- I kept thanking him over and over again for his incredible influence in my life.
"And let us run with perseverance the race marked out for us, fixing our eyes on Jesus, the Pioneer and Perfecter of Faith" (Hebrews 12)
And run with perseverance we did, on an incredible race that has been so perfectly marked out of us, fixing our eyes on the perfecter of faith. Y'all, God is really so very Good!
Thank you to those that were able to join us yesterday, those who made a donation, and the countless number of you who said a few extra prayers for a successful run.
Each Run For The Rose includes a 'Survivor Walk', where brain cancer survivors walk and we are able to cheer each of them on each step of the way. It's an incredibly emotional moment at the run, as you see the countless survivors, where you see that brain cancer does not discriminate- there's every ethnicity, every age, and every gender. We can't thank the Dr Marnie Rose Foundation enough for all they continue to do in the brain cancer community and allowing us to celebrate Dad, and the many other survivors.
I'm still processing donations, but as of right now it looks like we will have $6,130 this year alone. INCREDIBLE!
Which means in the last four years we've donated $27,330! And that has everything to do with the amazing friends and family we have in our lives, those that have supported us each step of the way. Thank you!
And on top of having donated such an incredible amount of money, this year alone we brought 90 people to the run in Dad's honor. 90 people who have exceptionally busy lives, but took time out of their busy weekend to join us for an event that means so much to my entire family.
The rain. The forecast wasn't just rain, but hail- tornadoes- flooding. Imagine the absolute worst possible running conditions, that's what the forecast included.
And I looked at that forecast and I was so disappointed- but if I've learned anything these last 3.5 years it's that we serve a pretty amazing God- so I said a few prayers (ok I may have talked to him constantly once I found out about the rain!) and it went a little like this:
"Hey God, so I see there's a little bit of rain in the forecast for Sunday. And I'm working so hard on reminding myself that your plan is absolutely perfect, and there is always a purpose to your work. So if the weather is so bad that the run has to be cancelled, I will understand and remind myself that there is a reason for it all. But, I do know you've got a little pull up there, so if you don't mind moving that rain out of Houston, I would really appreciate it."
Sometimes I think God laughs a little from our talks.
And I repeated this prayer over and over again. And y'all, no rain. Not a drop! Do we serve an awesome God or what?!?
The race was incredible. As I reached the end of the race, I looked ahead and saw a brain cancer survivor ahead of me (they each wear a special colored hat during the run), and that's when I knew there was no way I was walking or stopping- because if he could run this race, by all means I could do the same.
The anticipation and concern over the weather was such a perfect comparison to our lives these last 3.5 years. With a beast like Glioblastoma, the forecast is always the worst of the worst- similar to what the weather was predicting yesterday. And I learned early on in Dad's cancer journey that we can not fear bad news, but confidently TRUST- and as anxious and stressed as I was going into the run (and on most MRI days for Dad), I try to remind myself that it is out of my control, and in the control of Him. And then when God's absolute glory shines through- whether it be answered prayers for clear skies for the run, or a great MRI- the appreciation I have for His extra hand in it all is so incredibly great. As I took each step of those 3.1 miles, I just kept thanking God over and over again for another year at the run- I kept thanking him over and over again for his incredible influence in my life.
"And let us run with perseverance the race marked out for us, fixing our eyes on Jesus, the Pioneer and Perfecter of Faith" (Hebrews 12)
And run with perseverance we did, on an incredible race that has been so perfectly marked out of us, fixing our eyes on the perfecter of faith. Y'all, God is really so very Good!
Thank you to those that were able to join us yesterday, those who made a donation, and the countless number of you who said a few extra prayers for a successful run.
Each Run For The Rose includes a 'Survivor Walk', where brain cancer survivors walk and we are able to cheer each of them on each step of the way. It's an incredibly emotional moment at the run, as you see the countless survivors, where you see that brain cancer does not discriminate- there's every ethnicity, every age, and every gender. We can't thank the Dr Marnie Rose Foundation enough for all they continue to do in the brain cancer community and allowing us to celebrate Dad, and the many other survivors.
Thank you all for your love and support, and thank you all for helping us BTHO Brain Cancer!
Thursday, March 30, 2017
National Doctors' Day.
Today, a little reminder popped up on my Facebook- it's National Doctors' Day, and I couldn't let this day pass without celebrating some of the amazing doctors in our lives.
One of my favorite quotes reads:
"Part of winning the battle against cancer is hope, faith, determination, strength, and keeping positive. The other part of winning the battle is a great medical team on your side. I learned early on that statistics are just numbers, and I'm more than a number. I'm a strong human being with inner strength and an iron-clad determination to fight to win. Statistics don't tell you about the human behind the fighter who possesses the will and strength to fight, win and overcome."
Early on in Dad's cancer journey we knew that we found the perfect doctor for Dad- Dr. Erin Fleener. We were thrown into this world of cancer, and Dad's amazing Neurosurgeon, Dr. Bradley White, recommended Dr. Fleener as our Oncologist. We accepted, and the rest is history.
And three and half years later, she's still our doctor, and one of our favorite people.
It takes a pretty special person to be an Oncologist, and it takes a pretty special person to work in an Oncologist office (I'll get to those amazing people soon!). But Dr. Fleener handles it all, our good days and our exceptionally tough days, with a smile, love and a little bit of hope. It's all things that we so perfectly need throughout this journey.
We trust her. It's an amazing thing when you trust your doctor 100% to care for your loved one and make the best decision for them at that exact moment. And over the last three and a half years, she's done just that. Dad hasn't been the easiest patient, as we've had some scary looking MRI's, moments where I heard "possible stroke" more times that I'd like, and times where we all struggled in deciding when or IF we should stop treatment- but through each moment she is the logical one who is able to share her perspective and give us the best advice possible. And it's clear that her advice has been exactly that, the best advice, as Dad is close to celebrating 3.5 years as a brain cancer survivor.
And what would a great doctor be without great nurses and staff! The nurses and staff at the Cancer Clinic rank up there with some of the kindest people I've ever met- as they work in a place that could be so exceptionally cold and sad, but instead, they make it hopeful and bright. From the receptionists, to the ladies in billing (which will always hold a very special place in my heart), to the nurses in the front and our chemotherapy nurses in the back- each of them have embraced my family as their own. We all receive hugs each time we visit, and I've never once heard of anyone refer to my Dad as a patient number- instead it's Mr. Glenz or Larry. In a place that could feel so incredibly devastating, they've each managed to make it such a positive experience for us.
Trust is such a huge thing in the scary world of cancer. As there are terms that are still thrown around that I do not understand, and MRI reports that still read as though they are typed in a different language. But in this world of unknown, trusting that your doctor has the absolute best intentions of your loved one, trusting that your doctor truly loves your family, that makes the scary world of cancer feel a little less scary.
We are so thankful for each doctor that has been on this journey with us, and especially Dr. Fleener who has walked with us hand in hand throughout some of our most difficult days.
Our next MRI is scheduled in JULY! We pray that Dad continues to feel well and regains his strength just a little more each day. We are so incredibly thankful and blessed to be on this journey with such amazing people. Thank you all, and thanks for helping us BTHO Brain Cancer!
One of my favorite quotes reads:
"Part of winning the battle against cancer is hope, faith, determination, strength, and keeping positive. The other part of winning the battle is a great medical team on your side. I learned early on that statistics are just numbers, and I'm more than a number. I'm a strong human being with inner strength and an iron-clad determination to fight to win. Statistics don't tell you about the human behind the fighter who possesses the will and strength to fight, win and overcome."
Early on in Dad's cancer journey we knew that we found the perfect doctor for Dad- Dr. Erin Fleener. We were thrown into this world of cancer, and Dad's amazing Neurosurgeon, Dr. Bradley White, recommended Dr. Fleener as our Oncologist. We accepted, and the rest is history.
And three and half years later, she's still our doctor, and one of our favorite people.
It takes a pretty special person to be an Oncologist, and it takes a pretty special person to work in an Oncologist office (I'll get to those amazing people soon!). But Dr. Fleener handles it all, our good days and our exceptionally tough days, with a smile, love and a little bit of hope. It's all things that we so perfectly need throughout this journey.
We trust her. It's an amazing thing when you trust your doctor 100% to care for your loved one and make the best decision for them at that exact moment. And over the last three and a half years, she's done just that. Dad hasn't been the easiest patient, as we've had some scary looking MRI's, moments where I heard "possible stroke" more times that I'd like, and times where we all struggled in deciding when or IF we should stop treatment- but through each moment she is the logical one who is able to share her perspective and give us the best advice possible. And it's clear that her advice has been exactly that, the best advice, as Dad is close to celebrating 3.5 years as a brain cancer survivor.
And what would a great doctor be without great nurses and staff! The nurses and staff at the Cancer Clinic rank up there with some of the kindest people I've ever met- as they work in a place that could be so exceptionally cold and sad, but instead, they make it hopeful and bright. From the receptionists, to the ladies in billing (which will always hold a very special place in my heart), to the nurses in the front and our chemotherapy nurses in the back- each of them have embraced my family as their own. We all receive hugs each time we visit, and I've never once heard of anyone refer to my Dad as a patient number- instead it's Mr. Glenz or Larry. In a place that could feel so incredibly devastating, they've each managed to make it such a positive experience for us.
Trust is such a huge thing in the scary world of cancer. As there are terms that are still thrown around that I do not understand, and MRI reports that still read as though they are typed in a different language. But in this world of unknown, trusting that your doctor has the absolute best intentions of your loved one, trusting that your doctor truly loves your family, that makes the scary world of cancer feel a little less scary.
We are so thankful for each doctor that has been on this journey with us, and especially Dr. Fleener who has walked with us hand in hand throughout some of our most difficult days.
Our next MRI is scheduled in JULY! We pray that Dad continues to feel well and regains his strength just a little more each day. We are so incredibly thankful and blessed to be on this journey with such amazing people. Thank you all, and thanks for helping us BTHO Brain Cancer!
Wednesday, March 22, 2017
MRI Results. Dad Update 3/22/2017
When I think back to the fact that I've had this blog for over three years now, and we've been visiting the Cancer Clinic for almost 3.5 years (sometimes two-three times a month!) it's unreal to see how far we've come.
Dr. Fleener talked about the statistics associated with Dad's cancer- sharing some new studies and the question we all have in the back of our head- what are the chances of this tumor coming back?
Well, about 5-10% of patients survive past 3 years- yes, that statistic is FAR too low, so we've already beat the odds right there! And then studies rarely follow patients much longer than that, but it appears they stay fairly stable. So what are the chances Dad's tumor will return? That we don't know- but what we DO know, is that he's an incredible fighter who has beat the odds so far and for that we will celebrate!
Dad's feeling SO much better since stopping his treatments- from mowing the grass, to staying out later, and just enjoying more daily errands with Mutz- his energy seems to be higher and, overall, he looks great. We pray this continues on in the future!
Some blood work is being done to check all his levels- thyroid, blood count, vitamin levels, etc- as Dr. Fleener said, "Now that we don't have to worry about a tumor, we can focus on all the other things that can happen to you when you get old." We all laughed, but oh did that make my heart so happy to hear.
Friday I'll be heading to Houston to pick up packets for our upcoming trip to Run For The Rose- a 5k that supports the Dr Marnie Rose Foundation & brain cancer research. So far we have 76 members on our team and we've raised $4,530! My goal was to bring 75 people to the run and raise $5,000- we are so incredibly close! Thank you to all who have joined our team and/or made a donation- you are helping the next patient's story be that of a cure!
I hope Dad's story- one that has had MANY ups & downs along the way- can show others that with a little bit of hope and a whole lot of prayers, anything is possible. We would love to have each of you join us, or make a donation, to help support a foundation that is walking side by side with us in our brain cancer journey- one in which our main focus is to find a cure for this beast and provide others with HOPE.
If you would like more information on the run or how you can make a donation, please feel free to email me (glenzwhitney@gmail.com).
Visit our team website for more information: http://drmarnierosefoundation.racepartner.com/run-for-the-rose/bthobraincancer
Thank you all for the continued thoughts and prayers, and thank you all for helping us BTHO Brain Cancer!
Dad's MRI appointment today went great! There are no signs of tumor or cancer in his MRI- Dad is a 3.5 YEAR Brain Cancer Survivor. Oh it feels pretty darn amazing to read that!
Dr. Fleener talked about the statistics associated with Dad's cancer- sharing some new studies and the question we all have in the back of our head- what are the chances of this tumor coming back?
Well, about 5-10% of patients survive past 3 years- yes, that statistic is FAR too low, so we've already beat the odds right there! And then studies rarely follow patients much longer than that, but it appears they stay fairly stable. So what are the chances Dad's tumor will return? That we don't know- but what we DO know, is that he's an incredible fighter who has beat the odds so far and for that we will celebrate!
Dad's feeling SO much better since stopping his treatments- from mowing the grass, to staying out later, and just enjoying more daily errands with Mutz- his energy seems to be higher and, overall, he looks great. We pray this continues on in the future!
Some blood work is being done to check all his levels- thyroid, blood count, vitamin levels, etc- as Dr. Fleener said, "Now that we don't have to worry about a tumor, we can focus on all the other things that can happen to you when you get old." We all laughed, but oh did that make my heart so happy to hear.
Friday I'll be heading to Houston to pick up packets for our upcoming trip to Run For The Rose- a 5k that supports the Dr Marnie Rose Foundation & brain cancer research. So far we have 76 members on our team and we've raised $4,530! My goal was to bring 75 people to the run and raise $5,000- we are so incredibly close! Thank you to all who have joined our team and/or made a donation- you are helping the next patient's story be that of a cure!
I hope Dad's story- one that has had MANY ups & downs along the way- can show others that with a little bit of hope and a whole lot of prayers, anything is possible. We would love to have each of you join us, or make a donation, to help support a foundation that is walking side by side with us in our brain cancer journey- one in which our main focus is to find a cure for this beast and provide others with HOPE.
If you would like more information on the run or how you can make a donation, please feel free to email me (glenzwhitney@gmail.com).
Visit our team website for more information: http://drmarnierosefoundation.racepartner.com/run-for-the-rose/bthobraincancer
Thank you all for the continued thoughts and prayers, and thank you all for helping us BTHO Brain Cancer!
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